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Author Topic: Team Tia  (Read 4790 times)
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Team Tia
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« Reply To This #20 on: September 12, 2011, 03:27:47 PM »

Wow, only posted a short time and Thank you to the KivaFriends that have already brought the total to 50 euros.

Charmaine

Goodness I have only just had chance to check Tia's emails and the link I was provided for Kiva Friends.  I can´t believe you are doing this for my lovely little lady.  I haven´t told her about this as I want it to be a lovely surprise.

I really don't know what to say or how to thank all of you.  You brought me to tears.

Huge hugs and thanks from Tia's emotional mum.

Jed
xx
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cjp1973
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« Reply To This #21 on: September 12, 2011, 04:50:14 PM »

We are halfway, 100 euros has been raised so far to replace Tia's stolen bicycle.

All the information you need to donate is just a couple of messages earlier in this thread! Can we raise the other half by the coming weekend?

Thanks to those that have donated so far, kiva friends are wonderful!

Charmaine

EDIT: Make that, 125 euros raised  Thumbs Up
« Last Edit: September 12, 2011, 04:54:27 PM by cjp1973 » Logged
cjp1973
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« Reply To This #22 on: September 13, 2011, 08:13:53 AM »

Wow, we are now up to 145 euros donated towards Tia's bicycle.  Below is how to help.  We are getting close to 200 euros.  KivaFriends Rock!



So if any of you would like to help replace the bike that was stolen you can do so HERE  The donation button is on the left hand side of the page, or if you would like to donate a kiva gift card to the cause please let me know.  

If our goal was 200 euros that should replace the bike, stabilizers and Meows seat!  And to keep track if you donate and feel like it, send me a message so we can celebrate reaching 200 Euros!

Charmaine
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Jill
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« Reply To This #23 on: September 13, 2011, 10:01:48 AM »

I'd thought I was going to wait a few days before posting here again, but "best-laid plans" and all that....

That’s really wonderful, Charmaine.
Thank you so much for keeping us updated, and thank you and all the other caring people who are helping to make this happen.  It’s especially meaningful because of the financially precarious and sometimes desperate situation these loving parents have long been in.  


I know that that isn’t something they’d want a lot of public conversation about, and I also know that, for them, it pales in significance next to the currently relatively good health and happiness of one of our favorite Kiva lenders.   Nonetheless, it has to make this wonderful show of KivaFriend (and other Kiva lender) generosity* toward their so beloved daughter feel incredibly and probably inexpressibly BIG.  And it makes me smile and should make you smile just to think about it.


When I was riffing on the theme and goofing around on the Internet, I came across some pretty fun bike-related stuff.  
See, below.

Strange and Impossibly Loaded Bicycles


Top 10 Bizarre Do-It-Yourself Bicycles



Some of the happiest memories of my youth revolve around the songs we used to sing as a family, whether on a road trip, on the way to the Sunday drive-in where we used to get great hamburgers and onion rings, or just when and wherever.  One of the sweet many many many was “A Bicycle Built For Two.”  The second version, below, has a verse that for obvious reasons brought to mind a one-time really active Kiva Friend who used to make a lot of people smile here.




*EDIT: I was just thinking.  I only wish there were a KivaFriends or a similarly kindhearted community out there for all the other little kids and families who are having to struggle and sometimes worse, hurt really badly, through absolutely no fault of their own.  I guess it’s “Starfish, starfish,” all over again, huh?  And we do what we can.



* url.jpg (30.94 KB, 400x329 - viewed 49 times.)

* Unusual-Bikes-4.jpg (41.43 KB, 570x436 - viewed 43 times.)

* unusual_bike_08.jpg (55.2 KB, 427x640 - viewed 43 times.)

* pterosail.jpg (20.08 KB, 480x352 - viewed 45 times.)

* einstein_on_a_bike_smiling.jpg (40.09 KB, 500x500 - viewed 43 times.)

* bike-of-the-future-6.jpg (46.53 KB, 850x573 - viewed 39 times.)
« Last Edit: September 13, 2011, 11:15:45 AM by Jill » Logged
Team Tia
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« Reply To This #24 on: September 19, 2011, 02:17:05 PM »

Hi Team Tia,

I just wanted to let you know that Tia has had two important appointments today, cardio and endocrino. The cardio appt went well and all is stable, which is good news but the endo appt was not good. She has now been diagnosed with growth hormone deficiency and needs to be tested to see if she can have daily hormone injections to help her grow. If not then we have a big problem. We have added a bit more info on her website but if you want to know more please just email and I can fill you in on the details.

As always our huge thanks for being such a wonderful team.

Tia's Mum

Tia sends you all a big hug and kiss xoxo
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Jill
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« Reply To This #25 on: September 19, 2011, 02:53:57 PM »

Had a quick look:

http://en.wikipedia.org/wiki/Growth_hormone_deficiency


“…. Treatment
Main article: Growth hormone treatment

GH deficiency is treated by replacing GH with daily injections under the skin or into muscle. Until 1985, growth hormone for treatment was obtained by extraction from human pituitary glands collected at autopsy. Since 1985, recombinant human growth hormone (rHGH) is a recombinant form of human GH produced by genetically engineered bacteria, manufactured by recombinant DNA technology. In both children and adults, costs of treatment in terms of money, effort, and the impact on day-to-day life, are substantial…

Ah, damn…..
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cjp1973
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« Reply To This #26 on: November 22, 2011, 10:21:27 AM »

I just received a note from Jed.  Tia had her appointment today for the Growth Hormone Stimulation Test.  As well and because of the extensive tests she was having today, she received the bicycle.

Quote
We got back later than expected and without the results!  We need to wait until they call us or Tia's next appointment which is not for four weeks yet.  I do hope they call us sooner than that as the wait is agony.
 
Tia totally freaked out when they started poking and prodding at her and ended up having to take a light sedative.  Poor love is a bit washed out but none the worse for wear.  She was ecstatic about the bicycle.  She knows that it is an early Christmas present and Being Brave present from all her Kiva friends.  She is having a nap now but as soon as she feels a bit livelier she will send you all a personal message of thanks.  Also a huge thanks from me and Aaron. We truly think our Kiva friends are wonderful, generous and so considerate to us and especially to Tia.  We have also got enough credit to do another loan for our team so we will look for something special this evening as it is a way Tia can give back to her Kiva family.
 
Again a huge thanks!  As soon as the results are in I will let you know.
 
Jed

A big thanks to all who helped make the bike a reality Smiley 

Charmaine

Had a quick look:

http://en.wikipedia.org/wiki/Growth_hormone_deficiency


“…. Treatment
Main article: Growth hormone treatment

GH deficiency is treated by replacing GH with daily injections under the skin or into muscle. Until 1985, growth hormone for treatment was obtained by extraction from human pituitary glands collected at autopsy. Since 1985, recombinant human growth hormone (rHGH) is a recombinant form of human GH produced by genetically engineered bacteria, manufactured by recombinant DNA technology. In both children and adults, costs of treatment in terms of money, effort, and the impact on day-to-day life, are substantial…

Ah, damn…..

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Team Tia
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« Reply To This #27 on: December 22, 2011, 01:23:37 PM »

Hi everyone, here is a little message that Tia put on her team message board:

I wanted to let you know that my results came back today and it is not a good news day.  The medicine didn't work. At all!  Not even a little bit.


It's a bit hectic and stressful right now but as soon as I get a minute I will update here and on her website (hopefully in a couple of hours).
 
Thanks to everyone for your thoughts, prayers, well wishes and generosity.  You are truly amazing.

Jed
(Tia's mum)
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cjp1973
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« Reply To This #28 on: January 18, 2012, 05:47:45 AM »

Today Tia is going in for a 2nd Growth Hormone Stimulation Test with the hope that she is 1 in a million and they will find it is working in some way.  So good thoughts would be much appreciated by the family today as it is not easy for Tia to go through this test.
So I ask Tia about things to lend to today in hopes that many on the team would make a loan and write a message on the message board with the loan your chose and a good thoughts message to Tia.  This was her response.  So I am on my way to find something health related, or arts and crafty.  I hope many of you will, if not loan today for Team Tia, leave a message on the boards for her to read this evening.
Quote
Charmaine - I think that is a great idea! I would love to loan to someone that needs help with health, or help with education or arts and crafts but I really don't mind as I am happy that my team members and us are able to help people at all. I love my Kiva Friends!

Charmaine

Hi everyone, here is a little message that Tia put on her team message board:

I wanted to let you know that my results came back today and it is not a good news day.  The medicine didn't work. At all!  Not even a little bit.


It's a bit hectic and stressful right now but as soon as I get a minute I will update here and on her website (hopefully in a couple of hours).
 
Thanks to everyone for your thoughts, prayers, well wishes and generosity.  You are truly amazing.

Jed
(Tia's mum)
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